Getting a new J tube today at Duke Raleigh! This time, they are going to sedate me– hallelujah. I have second-degree burns around my stoma (from bile), granulation tissue and ulceration around/inside of the tract. Plus PTSD from previous changes…yikes. Here’s to hoping the sedation…well…sedates me!
This evening, I finally got to meet my beautiful, sweet, strong spoonie sister Nicole! We’ve ‘followed’ each other & talked online for almost two years now, but we never got to meet in person despite living only a half hour away. She is INCREDIBLE– truly one of the most beautiful souls I’ve ever met. She endures so much each & every day, yet somehow manages to find joy through it all. She is a superhero! She’s been a huge encouragement to me throughout this crazy chronic illness journey. My heart is so full after getting to hug her in person! We literally just hung out on her couch for like three hours, talking, laughing & commiserating about anything & everything. We could just BE- the good, the bad & the ugly- without having to explain ourselves or wear a fake smile. We both needed this so much. I’m beyond excited for our future spoonie adventures! Love this girl SO stinkin much!
Thanks to the amazing Michaela Shelley for yet another great Feeding Tube Awareness Week video this year!
Happy Gastroparesis Awareness Month, everyone!
(Link restored as of 4/2/17) 🙂
Haha, oh my. Throwback to September of 2015! This is just me being ridiculous. But watching this video today, all I can think is wow, I’ve gained so much weight! Definitely look a lot healthier now. Thank you, feeding tube!
Texts I get from my Uncle Mike…bahaha. The “plug” he is referencing is my tube that accidentally got ripped out. And “stay away from the light” cracks me up because I wasn’t even sedated. Never a dull moment with this guy… 🙈
I am scheduled to take my Medical Terminology final exam today, so doing the procedure without any sedation! Definitely not excited for the procedure (last time was really painful), but l am certainly looking forward to leaving here with a brand new, clean, fully-functioning tube! Trying to study prefixes and suffixes for the exam and not let my nerves get the best of me. Hoping all goes smoothly!