Not Your Average Pole Dance

Should I add “pole dance enthusiast” to my Tinder bio?  Tubies do it better… 😉

 

Life isn’t about waiting for the storm to pass.  It’s about learning to dance in the rain.

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Today Is My 2 Year Tubie-Versary!

Just realizing today is my 2 year tubie-versary 🙂 Lately I’ve been finding myself discouraged by setbacks…but looking at these pictures I cannot help but smile seeing how far I’ve come since then! Love that my dad captured the pure joy on my face when I woke up from anesthesia just in time for pet therapy (and before I realized just how tough my recovery would actually be, lol). Here’s to pressing on & continuing to make the most of the life I’ve been given!

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Feeding Tube Change # ?

Getting a new J tube today at Duke Raleigh! This time, they are going to sedate me– hallelujah. I have second-degree burns around my stoma (from bile), granulation tissue and ulceration around/inside of the tract. Plus PTSD from previous changes…yikes. Here’s to hoping the sedation…well…sedates me!

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BE BRAVE

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Feeding Tube Change #3

I am scheduled to take my Medical Terminology final exam today, so doing the procedure without any sedation!  Definitely not excited for the procedure (last time was really painful), but l am certainly looking forward to leaving here with a brand new, clean, fully-functioning tube!  Trying to study prefixes and suffixes for the exam and not let my nerves get the best of me.  Hoping all goes smoothly!

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Waiting for a feeding tube change at Duke Raleigh Interventional Radiology

 

119lbs??!

Guess who now weighs 119 lbs??  This girl!!  Wow.  I haven’t weighed this much in years.  None of my pants fit anymore!!  But hey, I’m not complaining…that is a great problem to have.  I’ve been working so hard to get to this point.  I’ve had this feeding tube for 9 months now, and it has slowly but surely given me my life back.  So thankful!