Feeding Tube Change # ?

Getting a new J tube today at Duke Raleigh! This time, they are going to sedate me– hallelujah. I have second-degree burns around my stoma (from bile), granulation tissue and ulceration around/inside of the tract. Plus PTSD from previous changes…yikes. Here’s to hoping the sedation…well…sedates me!



Feeding Tube Change #3

I am scheduled to take my Medical Terminology final exam today, so doing the procedure without any sedation!  Definitely not excited for the procedure (last time was really painful), but l am certainly looking forward to leaving here with a brand new, clean, fully-functioning tube!  Trying to study prefixes and suffixes for the exam and not let my nerves get the best of me.  Hoping all goes smoothly!

Waiting for a feeding tube change at Duke Raleigh Interventional Radiology



Guess who now weighs 119 lbs?? ¬†This girl!! ¬†Wow. ¬†I haven’t weighed this much in years. ¬†None of my pants fit anymore!! ¬†But hey, I’m not complaining…that is a great problem to have. ¬†I’ve been working so hard to get to this point. ¬†I’ve had this feeding tube for 9 months now, and it has slowly but surely given me my life back. ¬†So thankful!

Why Your Reaction To My Feeding Tube Makes Me Cringe

When someone sees or hears about my feeding tube for the first time, I tend to get a lot of questions like,

“What is that?”

“What happened?”

“Are you okay?”

The questioning doesn’t bother me; I don’t mind explaining. ¬†I smile and reply that I have Dysautonomia and¬†gastroparesis, at times even thanking the person for asking.

Sometimes I also get the question, “Are you recovering from an eating disorder?”

When I answer no, I get reactions such as:

“Phew! ¬†I was afraid you were one of those girls trying to starve themselves!”

“Oh, so you¬†actually have a problem. You have a¬†real illness.”

I know they are probably well-meaning, but I cannot help but cringe a bit at their response.

I myself have never suffered from an eating disorder. ¬†However, I have had my struggles with major depression, and let me assure you: mental illness is a big deal. ¬†To constantly battle your own mind is something I wouldn’t wish on my worst enemy. ¬†It’s isolating, painful, and absolutely exhausting.

I cannot even begin to imagine how hard it must be to respond to the questions I’ve gotten while actually having a mental illness like an eating disorder. ¬†People have gone as far as apologizing for making an assumption about my tube, as if the very idea of having a mental illness should disgust me. ¬†No wonder people are so afraid to seek help…

The mental illness stigma in our society needs to change. ¬†An eating disorder isn’t simply a girl or boy who wants to look like a model. ¬†Depression is so much more than being sad. ¬†I have watched mental illness destroy the lives of dear friends and tear apart my own family, physically and emotionally. ¬†It’s very real, very serious, and much more common than some like to think…

No, I do not and have never had an eating disorder. ¬†My feeding tube was placed because of severe autonomic dysfunction and a paralyzed GI tract, and while my tube can drive me crazy at times, I am not one bit ashamed of the thing helping to keep me alive. ¬†But those in treatment for mental illness should not be ashamed either. ¬†As a matter of fact, they should be proud of the courage it took to seek out that help! ¬†The only people who need to be ashamed are the ones who have the audacity to belittle someone else’s fight.

Ode To My Feeding Tube

Oh, my dangling companion

Precious link to my jejunum

Once enemies, now my closest confidant

Inseparable team

How I appreciate your friendship

Your quirks, clogs, spills and drips–

I’ve grown to love them all

Tube that makes me normal,

Tube that sets me apart.

Sustainer of life, my ticket to the future

Proudly protruding from my abdomen

Durable through the constant tug-of-war

Between inside and outside

Illness and wellness

Life and death

Warrior, bypassing paralyzed organs

Knight in plastic armour

Surpassing the traitors within

Reminder of a winding journey of ups and downs

Pain and triumph

Sign of strength yet revealer of weakness

Thank you for your service, you beautiful little paradox

(Written for ENG 289…lol)