Having a lot of GI testing done lately. I got my gastric emptying study out of the way Thursday. Esophageal manometry & 24-hour esophageal pH test tomorrow. Not particularly looking forward to either, especially since we have to travel to Wake Forest Baptist yet again (1.5+ hours). Apparently we have to drive all the way back early Tuesday morning so they can remove the esophageal pH tube..?!?! I find it ridiculous to travel just for them to yank it out, but alas that’s the rule…
Throwback to Falcons Cheer Camp in November of 2011! Taylor and I were assistant coaches and both of our little sisters were on the team. Bre is #3– she’s so adorable! She was 12 when this video was filmed. But even though this camp was about the middle school squad and this video was made to help teach them, I’ve played it over and over to selfishly watch myself. I’m torturing myself remembering my vibrant, healthy days and mourning my past life. And maybe, just for today, that’s okay.
Should I add “pole dance enthusiast” to my Tinder bio? Tubies do it better… 😉
Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain.
Just once I’d like to watch the sun rise through the cracks in my blinds without a feeling of dread and crushing despair.
I know you’re good
But this don’t feel good right now
And I know you think
Of things I could never think about
It’s hard to count it all joy
Distracted by the noise
Just trying to make sense
Of all your promises
Sometimes I gotta stop
Remember that you’re God
And I am not, soThy will be done…
Happy birthday to me; I’m officially 23! 🎉🎈
I got birthday hugs & the sweetest gifts from the amazing College Inn crew! Tifani gave me this fancy mug & a beautiful candle that smells sooooo good & says “Hello, Sunshine” ☀️ She said I am the most sunshine-y person she knows & I always brighten her day! I teared up & honestly still do thinking about it. And Austin gave me the bright, gorgeous flowers you see in the pictures below! I was so surprised & so happy I was literally shaking. I still can’t believe they did that!
Then I got to spend my birthday evening with my parents & Clyde 🙂 They showed up to my apartment door wearing giant party hats & big, cheesy smiles…which totally caught the maintenance workers off guard when they answered the door, lol. We went to Mellow Mushroom & had some delicious gluten free pizza with onions (my favorite)! After dinner, we went to McDonalds & sat at a booth for hours drinking hot chocolate, just talking & laughing about everything & nothing at all. I am so incredibly blessed to have a family who truly enjoys one another’s company & who can have fun doing just about anything. My parents are my best friends & I don’t know what I would do without them. We are a dysfunctional bunch, but I wouldn’t change a thing.. ❤
And Peter wants to take me to a birthday dinner tomorrow night! We were supposed to see each other tonight, but I was feeling a bit low after some things happened & so I asked if we could reschedule. I am actually excited we’re going tomorrow instead, because, as dumb as this may sound, that means the celebration isn’t over 🎉
I received some really, really sweet text messages & voicemails today that reminded how many people out there truly care & love me, today & every day, even though we may not get to see one another often. I really needed that, especially lately.. ❤
I truly appreciate everyone who helped make my special day so special, both in person & from a distance! I feel the love 😘
Here’s to year 23!!
Not all superheroes wear capes. Sometimes they look like tired parents in flip flops, perched in uncomfortable armchairs. A constant in the storm, a comrade in battle, hand-in-hand, never wavering. Clothed in strength, patience, determination, faith & unconditional love.. ❤
Dr. Wang recently started me on IV iron infusions and is also considering IV folate for the future.
My blood counts have always been low (I’ve been anemic & deficient in multiple micronutrients for a while), but levels dropped really dramatically in the past two months. My hemoglobin went from 11.0 to 9.6, iron went from 7 to 2, folate dropped from 6.1 to 3.2, ferritin went from 6 to 4, B12 dropped from 319 to 220, etc.
I had my first infusion last week. I was a little bit itchy during and sore after, but otherwise it went really well.
Today, I had my second iron infusion and all I can say is, yikes!
5.5 hours, 2 episodes of anaphylaxis, ice packs head to toe, nonstop coughing & dry heaving for almost an hour, a few mini candy canes, & lots & lots of IV fluids, steroids & Benadryl later, we are finally home!
Last iron infusion was so calm & uneventful…but I’ve been in a weird systemic reaction all week & today my mast cells were just not having it. My hematologist kept coming in & looking at me with stern concern & my poor mother was so nervous…but the nurses were beyond amazing & sooo quick to pick up on things, even before I did! I Spent the whole time laughing & joking with them, making the best of things as I always do…even resorting to communicating through funny faces when anaphylaxis stole my voice.
Life is what you make it, & times like this can either be an ordeal or an adventure. I’m choosing to find joy in the little things & praising God through it all. Circumstances like this are out of our control, so we may as well laugh out loud as we hold on for the ride.. 🙂