Today Is My 2 Year Tubie-Versary!

Just realizing today is my 2 year tubie-versary ๐Ÿ™‚ Lately I’ve been finding myself discouraged by setbacks…but looking at these pictures I cannot help but smile seeing how far I’ve come since then! Love that my dad captured the pure joy on my face when I woke up from anesthesia just in time for pet therapy (and before I realized just how tough my recovery would actually be, lol). Here’s to pressing on & continuing to make the most of the life I’ve been given!

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Ode To My Feeding Tube

Oh, my dangling companion

Precious link to my jejunum

Once enemies, now my closest confidant

Inseparable team

How I appreciate your friendship

Your quirks, clogs, spills and drips–

Iโ€™ve grown to love them all

Tube that makes me normal,

Tube that sets me apart.

Sustainer of life, my ticket to the future

Proudly protruding from my abdomen

Durable through the constant tug-of-war

Between inside and outside

Illness and wellness

Life and death

Warrior, bypassing paralyzed organs

Knight in plastic armour

Surpassing the traitors within

Reminder of a winding journey of ups and downs

Pain and triumph

Sign of strength yet revealer of weakness

Thank you for your service, you beautiful little paradox

(Written for ENG 289…lol)

More Like Falling In Love

From August 25, 2015.

Had moved into apartment all by myself, while really ill, and the place was trashed.

It was trashed BEFORE I even moved in, because my mother asked them not to clean or paint (because I have Multiple Chemical Sensitivities). There was literally blood smeared around the bathroom and nasty stains on the carpet and goodness knows what all over the walls and desk.

Worked really hard to get it together- again, BY MYSELF! – despite my health and my body’s objections. Took me hours (though the time-lapse makes it look like seconds!)…but I did it. I needed my room to be a place where I could think…study…breathe…function. And I had a lot of people to prove wrong.

As of now (9/7/15), the room looks COMPLETELY different. It is beautiful and matches and the carpet is even scrubbed and new-looking. It’s even organized ๐Ÿ™‚

The point of the beginning of this video?

I overcame everything and did what I needed to do…turned the pain into power…and was successful. Was the room perfect? Not even close! But did I make a lot of progress? YES.

Difficult does not equate impossible.

Small victories are still victories. ๐Ÿ™‚