As the cliche goes– low quality picture, high quality friend 👌🏼💜 I love every minute I get to spend with this beautiful, strong girl!!
Happy Gastroparesis Awareness Month, everyone!
(Link restored as of 4/2/17) 🙂
Haha, oh my. Throwback to September of 2015! This is just me being ridiculous. But watching this video today, all I can think is wow, I’ve gained so much weight! Definitely look a lot healthier now. Thank you, feeding tube!
A sweet spoonie sister, Michaela, made this awesome video for Feeding Tube Awareness Week! This is my fight song.. 🙂
Oh, my dangling companion
Precious link to my jejunum
Once enemies, now my closest confidant
How I appreciate your friendship
Your quirks, clogs, spills and drips–
I’ve grown to love them all
Tube that makes me normal,
Tube that sets me apart.
Sustainer of life, my ticket to the future
Proudly protruding from my abdomen
Durable through the constant tug-of-war
Between inside and outside
Illness and wellness
Life and death
Warrior, bypassing paralyzed organs
Knight in plastic armour
Surpassing the traitors within
Reminder of a winding journey of ups and downs
Pain and triumph
Sign of strength yet revealer of weakness
Thank you for your service, you beautiful little paradox
(Written for ENG 289…lol)
From August 25, 2015.
Had moved into apartment all by myself, while really ill, and the place was trashed.
It was trashed BEFORE I even moved in, because my mother asked them not to clean or paint (because I have Multiple Chemical Sensitivities). There was literally blood smeared around the bathroom and nasty stains on the carpet and goodness knows what all over the walls and desk.
Worked really hard to get it together- again, BY MYSELF! – despite my health and my body’s objections. Took me hours (though the time-lapse makes it look like seconds!)…but I did it. I needed my room to be a place where I could think…study…breathe…function. And I had a lot of people to prove wrong.
As of now (9/7/15), the room looks COMPLETELY different. It is beautiful and matches and the carpet is even scrubbed and new-looking. It’s even organized 🙂
The point of the beginning of this video?
I overcame everything and did what I needed to do…turned the pain into power…and was successful. Was the room perfect? Not even close! But did I make a lot of progress? YES.
Difficult does not equate impossible.
Small victories are still victories. 🙂
Ever wondered what a J-tube looks like? Well, wonder no longer! This baby gives me all my nutrition and medications. It bypasses my paralyzed stomach and goes straight into my jejunum. But…do you see the problem with this picture?
I’ll give you a hint: in order to get the nutrition, the tube must reside INSIDE your intestine. This little tubie got ripped out when I passed out and fell down the stairs (#DropItLikeItsPots). It’s just been that kind of week. Oh yeah, and by the time anyone decided to do anything about it, the stoma was completely closed and the balloon left inside was infected so turned into a full-out surgery that REALLY knocked my down about ten steps. Ugh…