Today Is My 2 Year Tubie-Versary!

Just realizing today is my 2 year tubie-versary 🙂 Lately I’ve been finding myself discouraged by setbacks…but looking at these pictures I cannot help but smile seeing how far I’ve come since then! Love that my dad captured the pure joy on my face when I woke up from anesthesia just in time for pet therapy (and before I realized just how tough my recovery would actually be, lol). Here’s to pressing on & continuing to make the most of the life I’ve been given!

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Two Years Gallbladder Free!

It’s been two years today since I had my gallbladder surgically removed! Two years free from crippling gallbladder ‘attacks’ that knocked me to the floor. It’s a nice thing to reflect on, because with that one surgery, I was CURED of what the pathologists deemed chronic cholecystitis. I wish all my illnesses and health woes had such easy fixes!

Feeding Tube Change # ?

Getting a new J tube today at Duke Raleigh! This time, they are going to sedate me– hallelujah. I have second-degree burns around my stoma (from bile), granulation tissue and ulceration around/inside of the tract. Plus PTSD from previous changes…yikes. Here’s to hoping the sedation…well…sedates me!

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BE BRAVE

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Feeding Tube Change #3

I am scheduled to take my Medical Terminology final exam today, so doing the procedure without any sedation!  Definitely not excited for the procedure (last time was really painful), but l am certainly looking forward to leaving here with a brand new, clean, fully-functioning tube!  Trying to study prefixes and suffixes for the exam and not let my nerves get the best of me.  Hoping all goes smoothly!

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Waiting for a feeding tube change at Duke Raleigh Interventional Radiology

 

More Like Falling In Love

From August 25, 2015.

Had moved into apartment all by myself, while really ill, and the place was trashed.

It was trashed BEFORE I even moved in, because my mother asked them not to clean or paint (because I have Multiple Chemical Sensitivities). There was literally blood smeared around the bathroom and nasty stains on the carpet and goodness knows what all over the walls and desk.

Worked really hard to get it together- again, BY MYSELF! – despite my health and my body’s objections. Took me hours (though the time-lapse makes it look like seconds!)…but I did it. I needed my room to be a place where I could think…study…breathe…function. And I had a lot of people to prove wrong.

As of now (9/7/15), the room looks COMPLETELY different. It is beautiful and matches and the carpet is even scrubbed and new-looking. It’s even organized 🙂

The point of the beginning of this video?

I overcame everything and did what I needed to do…turned the pain into power…and was successful. Was the room perfect? Not even close! But did I make a lot of progress? YES.

Difficult does not equate impossible.

Small victories are still victories. 🙂

Souvenir, Anyone?

Ever wondered what a J-tube looks like?  Well, wonder no longer!  This baby gives me all my nutrition and medications.  It bypasses my paralyzed stomach and goes straight into my jejunum.  But…do you see the problem with this picture?Screenshot 2015-09-25 at 4.03.56 PM
I’ll give you a hint:  in order to get the nutrition, the tube must reside INSIDE your intestine.  This little tubie got ripped out when I passed out and fell down the stairs (#DropItLikeItsPots).  It’s just been that kind of week.  Oh yeah, and by the time anyone decided to do anything about it, the stoma was completely closed and the balloon left inside was infected so turned into a full-out surgery that REALLY knocked my down about ten steps. Ugh…