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Duke Prom 2018 ❤
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Countdown ‘Til Prom

 

Only 3 days left until Duke Children’s Hospital Prom!!  Feels nice to have something to look forward to 🙂

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First Annual Duke Children’s Hospital Prom – 2017

This year’s theme is outer space.   I’m interested to see what they do with that and what the overall turnout will be.  Last year’s Prom was amazing, and I imagine it’s only gonna be better this year 🙂  I can’t wait to see everyone!!

Mourning The Girl In The Green Shirt

Throwback to Falcons Cheer Camp in November of 2011!  Taylor and I were assistant coaches and both of our little sisters were on the team.  Bre is #3– she’s so adorable!  She was 12 when this video was filmed.  But even though this camp was about the middle school squad and this video was made to help teach them, I’ve played it over and over to selfishly watch myself.  I’m torturing myself remembering my vibrant, healthy days and mourning my past life.  And maybe, just for today, that’s okay.

Forever Romanticizing The Past

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Why is it that even the best and most beautiful memories are so painful to recall?  Life was throwing curveball after curveball for that girl in the picture, but her smile is genuine.  She lived as if she had nothing left to lose, and while that sometimes meant lingering atop tall buildings, tears streaming as she smiled at the thought of the end– somehow THAT feels more desirable than….well…THIS.  And while I know my mind is just playing tricks on me, I still find myself wishing I was back in that period of my life. My irrationality frightens me sometimes…

Cuddles With Terd

Throwback to cuddles with my sweet Terd.  I love his fuzzy little self so much!  He and his sister, Squirt, missed me a lot while I was in the hospital that week and they needed lots and lots of hugs and kisses to make up for my absence. You can hear Squirt in the background demanding I give her a turn on my chest, ha ha. Miss them!!!

Today Is My 2 Year Tubie-Versary!

Just realizing today is my 2 year tubie-versary 🙂 Lately I’ve been finding myself discouraged by setbacks…but looking at these pictures I cannot help but smile seeing how far I’ve come since then! Love that my dad captured the pure joy on my face when I woke up from anesthesia just in time for pet therapy (and before I realized just how tough my recovery would actually be, lol). Here’s to pressing on & continuing to make the most of the life I’ve been given!

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4 Years Ago

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I cannot believe I graduated high school 4 years ago.  Wow.  Feels like lifetimes ago & yet just yesterday in so many ways. Looking back on pictures always fills me with an almost-suffocating sense of nostalgia and…well…emotion, I guess. Not happiness or even sadness, per se, but an overwhelming feeling that I cannot quite seem to name.  Looking at this picture, I am taken right back to that day– I experience the memories with all of my senses– & I am left feeling hollow yet full to the brim, tears streaming down my cheeks & smiling all at the same time…

The Reality of Chronic Illness: Prom Edition

Just realized I never shared this! Check out my amazing spoonie sister Em’s blog post about our experience attending Duke Children’s Hospital Prom…and all that went on ‘behind the scenes’ to prepare and recuperate… 🙂

Through the Peaks and Valleys

Last Saturday (April 22nd) Duke Children’s Hospital held their very first PROM! I had the amazing opportunity to not only attend but I got to attend with 3 fantastic ladies that I have gotten to know over the last year online! We share quite the list of medical diagnosis’ and life experiences.

Pre-Prom Prep!

Prom prep started about a week before the actual prom. Cancelling doctors appointments, scheduling doctors appointments, ER visits, lots of medicine, and rest rest rest!

Pre-prom prep (IV fluids, Nutrition, pain meds, steroids and prayer!)

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While we got ready for prom before getting our dresses on and doing our make-up we pre-medicated and talked about how much we get it. There was no need to explain anything or feel ashamed because they live it too! (Though I so wish none of us had to, it’s nice to not feel so alone).

We all meet online in…

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Two Years Gallbladder Free!

It’s been two years today since I had my gallbladder surgically removed! Two years free from crippling gallbladder ‘attacks’ that knocked me to the floor. It’s a nice thing to reflect on, because with that one surgery, I was CURED of what the pathologists deemed chronic cholecystitis. I wish all my illnesses and health woes had such easy fixes!